After looking back through pictures, I noticed that his head does kind of tilt to his left side. I took him to see our pediatrician who checked his range of motion and evaluated his head shape. He can turn his head to the right without any problems, but when he tries to go left his chin goes down towards his left shoulder. If that makes any sense. The back of his head is head is a little lop-sided, but it is getting better since he is sleeping on his stomach now.
Our pediatrician said that it is mild, and that it should work itself out since he is becoming more mobile. He didn't want to do a physical therapy referral at this time. He said that he would reevaluate at his six month checkup.
After some research, I have read that the sooner you catch it, the easier it is to treat. I have been trying to do some neck stretches a few times a day, but it doesn't seem to be helping.
Does anybody have any experience with this? Should I tell my pediatrician that I want him referred to a physical therapist anyway? I've pretty much learned over the last few years that you really have to be your own advocate.
I'm a little peeved at my pediatrician's on-call nurse anyway. Anderson spiked a fever of 102 earlier this month and I had to call them at night. The nurse basically determined that he had a little cold and was teething. She said that I didn't need to call back unless his fever reached 104. Mmmmmmk. The fever went away, but he was sooooooo fussy, wouldn't sleep/eat, and would let out wails all day and night. The fever came back and I noticed drainage coming from his ear, so I called and told them that I wanted him to be seen anyway. Turns out he has a double ear infection and one of his eardrums PERFORATED. Seriously?? Bless my sweet little baby's heart. I felt like a horrible mommy. That was something that could have easily been prevented.
Let it be known that from here on out, I will be taking him to get his ears checked every time his temperature gets over 100...not 104. Bump that. I don't care if I get on their nerves. Not to mention the fact that both Andy and my sister had febrile seizures when they were babies.
He is on antibiotics now and is doing MUCH better. I have my happy baby back:)
| You can't really tell in this picture, but he can't really extend his neck and look to the left. His head kind of stays "cocked" like this. Will it work itself out? Any advice will be appreciated! |


17 comments:
Check out the Babies Can't wait program through the Dept of Public Health. 1-888-651-8224 I think that is the state phone number.
That info was for Georgia. Here is South Carolina
If you think your infant/child birth to 3 years of age is developing or learning slowly, call BabyNet at 1-877-621-0865. BabyNet is an educational program administered by FirstSteps, that helps an infant or toddler with special needs move toward his/her full potential. Children who meet eligibility criteria are served regardless of family income. Once eligible, and depending upon the needs of the child, he/she may be transferred to a DDSN provider for the delivery of Family Training and Service Coordination.
I urge you to call. Torticollis can have far reaching effects other than just a head tilt. Vision and gross motor skills can be affected.
Thanks for explaining it to us! I don't see why you wouldn't go ahead with physical therapy because a) it's not going to hurt, and b) with physical issues, sooner is always better. If your gut feeling is to press for a referral, I would go for it. :)
Maybe contact Fiona about this:
http://palmtreemama.blogspot.com/2012/04/torticollis.html
or Bridget:
http://ourstorkgotlost.blogspot.com/
or Julia:
http://therrell.blogspot.com/
Good luck!
I have twin girls (TheAdventuresofAnnaandGrace.blogspot.com) and we dealt with Torticollis and did the helmet. In my experience, it did not get better and we had a majorly crooked noggin by the time we got done battling the insurance companies and getting to treatment. The sooner you catch it the better. It took us nearly 2 months just to get to the treatment part. We had a waiting period with our insurance company before they'd even consider treatment. I advise to start working on it now. The sooner you start treatment even if a helmet isn't required, the better the outcome. Doing a helmet before 1 year is best because that is when their heads really grow the most and it slows considerably after 1 year. Anna was in a helmet for about 3 months and we started when she was about 7 months old. It is really common in Baby A's according to our doc. He said about 90% of the twins he sees, it is always Baby A that needs treatment and B doesn't. And a majority of his patients were twins. I'd love to answer any questions or talk more about it with you!
So glad to hear it sounds very treatable. Here's hoping things clear up quickly and painlessly for your little man!
And I am grateful to IF for teaching me how very important being your own advocate is.
Yep, I was gonna mention Fiona and Bridget that Josey did above - definitely good connections for you!
My friend has twin daughters and one of her girls had the same issue. She started physical therapy at 3 months. She will be turning 1 in October and no longer has it. So I would request physical therapy.
No experience with the tort, I've read about it on internet forums from my birth groups, but I don't know a lot. I would probably push your pediatrician to take it more seriously though.
As for the nurse... ugh. I think that a lot of places don't take you seriously, especially as a first time mom. That's been my experience. They act like I'm totally new to all this and I don't think they realize I am a mean momma bear and I've been preparing years for this kid... it gets to be very frustrating and VERY OLD fast. Stand your ground, and good luck. I hope the poor little guy feels better soon!
My baby has tort. Mild case but we did PT. We are in SC as well and BabyNet did not cover it. But our insurance did. I would get it for sure! There are many other things that can happen as a result of tort.
Jenn
Glad you had an observant and experienced care-taker noticed it because I would have had no idea. Also glad that it is a mild case so that it will be easily corrected. I agree with the girls that I would insist that I get a referral for physical therapy. I hate that wait and see approach.
He is so darn cute!!!
Thanks so much to each of you for all of the helpful advice! I will definitely request a referral when we see the doctor next week! :)
As bad as this sounds skip the doctor. Call the early intervention in your area. They address any gross or fine motor issues and it is all free. no copay, no charges. They will bill your insurance if you have it but it can't be part of your deductible and again no copay.
We had great OT with our son. Loved all of the people who worked with us.
Mikki
I would go straight for a PT who specializes in this like the blog I told you about. Elizabeth had ear infections constantly, but no real symptoms except that her eyes would get goopy. Go for a check when the fever spikes. That may be your only sign. Don't beat yourself up about the ear infection. Easily remedied, but it will be small beans down the road! ;) Love you!
Aunt M
Pshhhhh 104 my a**. Is that nurse ca-razyyy? He's a baby. Any fever over a 100 should be checked out in my opinion. Because a lot of the time it is an ear infection. Go with gut on the neck issue. You're right we have to be their advocates! I guess if I were in your position I would ask for the referral. It wont hurt to have a physical therapist look at him and do some work on him.
Hey girl! Brooke also had this. It resolved on its own. It's because she favored one side to always turn her head. Her MD told me to turn her head the other way to help it resolve.
My daughter had torticollis as well. I picked it up early on (her muscle had a lump in it too, and her head was getting lopsided in the back), and got a referral for PT (I'm in Canada) from a pediatrician the replacement family doctor referred me to to shut me up. The pediatrician examined her for 1 minute and agreed with me on the diagnosis.
We only had 2 PT sessions, I think. One to show me some stretches, one to follow up. Because I caught it early, it was pretty mild. Now at 2.5, she still has a slightly uneven back of her head, but nothing that's noticeable unless her hair's wet.
For sure ask for the referral. Maybe with some PT you can avoid the helmet, which I think is the expensive thing.
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